I haven’t been writing for some time because I was moving house. There’s a saying in Serbia, that people who are moving are never merry, which is true, more often than not. In spite of curfew starting just as I’m seeing the contractors off, I’m merry. Truth be told, it’s all going too slow for my taste, but I’m still merry. I’ve created a room for home dialysis in my new home, just large enough to squeeze in a bed and the dialysis machine with a little bathroom a wall away, where a machine for reverse osmosis of tap water will be. I don’t have the machinery yet, but I’m hopeful.
In Vojvodina (the northern province where I live), as far as I’m aware, there are currently no people on home dialysis. In Serbia that number creeps up to sixty. Never mind that, we have THREE associations of persons on home dialysis. Why are we always so cursed? Even in times of need we are disunited. Can we achieve solutions when we’re not working as one? Is that the goal of this disunity? The mentality of “If I’m king in my little kingdom I’ll solve my problem and that’s it” is a very dangerous and unhealthy one…
I’m solving my problem alone, without an association. Slowly, but surely. I’m getting questions from a lot of people about getting home dialysis. I don’t know, and I wish I had the answer. I know an approval from the doctor’s council of the place your dialysis is administered is required, stating that you are stable enough for home dialysis. What you need next is an approval from the council of doctors of the Clinical centre which fills out a form sent by the National Health Insurance Association. To get this approval, you need to already have a dialysis machine and a reverse osmosis machine. Quite the catch 22, if you ask me. When the Health Insurance association grants its approval, you start home dialysis on the given date. The expendable material is brought to your home. You pay for some of it, but it’s mostly paid for by the National Fund, which in addition to this, covers the electricity and water bills. The salary of the nurse which you need, if you’re not being “plugged in” by a trained family member, is coming out of your pocket. You and another person need to complete the training for “plugging in and out”, as well as the whole process of dialysis in the Dialysis centre.
That’s everything I can tell you.
Oh, there’s another thing. In the case of bad parathyroid levels, It’s a lot cheaper to buy drugs in ex-Yugoslav countries. Two, maybe three times